Wednesday, March 8, 2017

The “Cool Table” And Why I Am Here—Please Don’t Be Afraid To Friend Me



True fact….i got hurt a great deal growing up….at home i got ganged up on and hated on, yes, downright abused, for being so different and weird…..and all through school…..i never got to sit at the cool table.
Please don’t be afraid to friend me or accept me as a friend. I am here because yes, i do need help, but i am also here because i care about helping as a fellow Autistic ally. I am still new at this, though, so i am going to fail, make mistakes, use the wrong terms, etc. I am still learning though. But i can assure all of you, my personal circumstances and struggles are real, and i am not here to just get cookies.
Below is my story.
When you grow up physically, mentally, and emotionally abused, and not liked because you are Autistic, both at home and at school, yet are not told you were, indeed, diagnosed as Autistic when you were 3 years old by your mom until you were an adult, only after you had seen a therapist who gave you a soft diagnosis of Asperger’s Syndrome when you were a 39 year old adult in 1999—-this can cause you a lot of unneeded grief and damage your whole life.
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I grew up thinking of myself as all wrong. That i was damaged and broken. That i would never have friends, never have a job, never get married, never have romantic relationships, etc. I grew up in a redneck family who did not accept me, who just felt i was lazy, soiled, selfish, etc. They didn’t know, they didn’t know—-and i was only told i was born with a perceptual handicap, their words, and childhood schizophrenic tendencies. Then when i got my SSI in 1981, i was labeled as paranoid schizophrenic.
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Then through years of therapy, i discovered i was Autistic. After i was near 40 years of age. As a result, i never got any of the services an Autistic child gets. I did spend from 1st through 4th grade in special ed classrooms, but then we moved to the country where there were no more special ed classrooms, and that was where i began to flounder.

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Because i grew up with little understanding, i learned early on, to cope by retreating into a world of my own, where i have always had a small group of imaginary friends who have always been like my angels. I would basically latch onto certain roads, highways, and electronics, especially those that caught my eye as attractive and personable and sweet and friendly—–and i would make imaginary friends out of those things.
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All through school, i longed to sit with the cool kids, and hang with the cool kids…..and be
able to sit at the cool kids table. There were times when the cool kids would let me, out of pity though, and then make me leave again, because i wasn’t like them. Oh, how that would hurt!
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Then i would go home and get yelled at and teased cruelly by my older brothers and sisters, and even my younger brother. My father hated me because i acted too weird for his tastes. He and my maternal grandmother could never understand me either, and i would just keep getting labeled with all these awful demeaning names and terms, yes, even the R word.
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Now, as an Autistic adult, i have discovered the cool table, sadly, very much exists in the Autistic community, and i am heartbroken about it…..because i think anything that is meant to leave people out, is anything but cool.
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Why? Because it tells those of us already struggling with internalized ableism and feelings that we are damaged goods, that yes, we are indeed, damaged goods—-even in a community where we should all feel safe.
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I understand that many of you have also been hurt, and you also suffer from PTSD and Complex PTSD from childhoods where you too were abused, talked over, not listened to, not taken seriously, etc. Many of you were hurt even worse than i was.
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I also understand that in the Autistic community, there have been those who have scammed people, lied, and presented themselves to be pitied just to get attention—those who just want cookies all the time.
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I understand that all of us have different triggers, and that there are certain types of people who trigger us.
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But then there are some of us who are sincere, who are trying to come alongside of all of you to tell my story, not just so i can get help, but because i want to help the Autistic community as a whole, get heard, noticed, understood, accepted, and included and respected as the real human beings we are.
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I admit when i first came to Facebook, i would unfriend, then refriend people alot—-but this was borne out of my fears of being rejected yet again, or because a person who didn’t understand, would start giving me lots of ableistic advice, then they’d turn on me and get mean—–and i was still learning about my Autism. In the beginning, i was even reaching out to bad places like Autism Speaks, thinking—-and wrongly so—–that they would help me, because i didn’t know better then, that they were not to be trusted, that they were and are a bad hate group.
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Below are posts culled from some earlier posts i made yesterday about me, and why i get afraid and run away at times. Because i don’t want people to be afraid to friend me.
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Post from 9 hours ago.
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“I am afraid to send out anymore new friend requests even though i would very much love to make more friends in the Autistic community.
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I just got snubbed by one person, and one friend that did accept me as a friend, has been snubbing me completely, and i do not feel welcome on their wall.
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People who know me, who know my situation, know i am not here to scam anyone, that my situation is real. But today, i feel as though i just got told i cannot sit at the cool table.
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From now on, i am only going to friend those who i meet through comment threads who seems open to me, who i know will actually give a damn about me.
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I also won’t stay friends with anyone who are going to show me that they are not approachable to me. Basically, if i don’t feel welcome, i am gone.
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I am not okay right now. I want to die.”
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Post from 4 hours ago.
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“I just did another friend cull and some preemptive blocks for self protection. I don’t need to have people on my list, or in the spaces i go, who don’t make me feel welcome on their walls and comment threads, who consistently ignore me, and those who are mean.
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Or anyone who wants to cling to me too hard.
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I am also not going to spend my energy supporting those who i feel don’t like and support me. Because being in the space of someone who doesn’t accept me, is a huge trigger for me……then i get depressed and down on myself. Sorry if that sounds selfish, but i am too kind, i think, too willing to let everyone in, and i need to stop that, for the sake of my well-being. It hurts getting slapped cold in the face, having doors slam shut, having my outstretched hands slapped away. Yes, that happened today.
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New rule…from now on, yes, i still welcome new friends, i still have a big heart and care about people, but from here on, if i want to friend someone, i will private message them first, to explain who i am, that i am in the Autistic community, why i sent the FR, etc., so ppl are not scared off. Or i will let people come to me and friend me.
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Also, if i see in a comment thread, that someone is taking the time to talk to me, and we aren’t friends yet, i will ask if they want to be friends, and go from there. No more am i going to just straight out friend request people anymore. It will save me the hurt and rejection, and possibly being labeled as spam to FB.
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Because rejection really does suck alot.
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I love all of you who are my true friends. I mean that with all of my heart.
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And now i am going to go in my comfy chair and try to forget that today happened.
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Thank you to all who were here for me today.”
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Comment from 39 minutes ago.

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“I want to be able to start going to Autistic conferences and speaking someday, and now feel i can’t do that because many of the important leaders who do go to those conferences, have elected to shun me.
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I cannot pretend this doesn’t hurt. I would expect it from non-Autistics, paaaaaarents, narrow minded people who don’t want to accept us Autistics as the cool people we are, and my family but not those who even run chapters of some of the Autistic organizations i am actually seeking ***help*** from.
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In my defense, what i wrote in the above post **IS** my defense, and if some have blacklisted me as possible friend material for doing what i needed to do for self protection because i ran away due to lack of spoons—then they are being unfair to me, not giving me the chance to explain why and try to make things right, because yes, in the beginning, when i first came to the Autistic community, i still had alot of internalized ableism, and did not understand as much as i do now about ableism, neurodiversity, and my Autism.
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Many of those who i did friend, i ran away from, because i did not know how to respond to their bluntness, blunt personality, etc. I have grown alot since then though, and now i am barred from their cool table because i ran away out of fear due to past hurts and disappointments, when i was a newbie.”
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Comment from 8 hours ago.
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“It’s hard for me bc i am housebound, plus grew up with few friends, and a whole bunch of siblings who were always ganging up on me and making me feel like shit warmed over all the time.
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I just can’t let my guard down as much anymore….that way….i won’t get hurt again.

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Getting the cold shoulder from my own community hurts even more though, bc i consider us all like we should be all family, ya know what i mean?”
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Comment from 8 hours ago.
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This is how i handle things today.
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“ I will basically unfriend and block a person
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if they are consistent in ignoring me
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i feel unwelcome on their wall
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they yell at and attack me verbally
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i get told how to feel or how to act—example if they tell me to cope by just wearing headphones/earplugs to cope with my environment
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they turn against me
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i get preached at, and someone tries to convert me to their brand of narrow minded Christianity
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or i see the person is so mean i am scared to even talk to them
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or they are unapproachable, hard to get to know.
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or they are too clingy and keep taking what i say, mean, always the wrong way.
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I will then block those people so i don’t have to see and get triggered by seeing them in mutual space like comment threads.
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Mean people trigger me alot.
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So those things are why i have the long block list i do. I don’t do that to be mean, i do that to self protect.
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I too will private message a person and talk there, so it doesn’t trigger and scare away people, especially if they’re new allies.”
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To all who have read this, i thank you….and i thank all of you who are my friends and allies.

Sunday, January 8, 2017

My Thoughts On The Current State Of Country

The following are my thoughts, written as Facebook posts, on the current state of our country, as we head towards a dark period of God knows what.
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With this dark cloud of uncertainty hanging over my head that the new government could now actually get away with gutting the benefits for elderly and disabled people, me included, i am finding it increasingly harder to enjoy or even handle everyday life.
I cannot sleep. I am getting more frequent sick stomach spells. I was so afraid this would happen.
Why do the republicans seem to hate us so much?
There has to be a way, please, to keep trump and the republicans from hurting us like this.
I do not have the spoons to get on the phone and call my state senators. It is hard for me to talk on the phone. Very hard. Especially if people talk too fast and are rude and impatient with me.
God, if you are still on the throne, please don’t let them take our only safety net we have away. I don’t want to be forced to live either on the streets or in a nursing home where i could get abused again. I love my IHSS and the in home caregiver i have. I love being able to live in my own home. Don’t i have that right? Do they not realize we are human beings??? That they are hurting real human beings????
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I have just begun to fight. I can’t make phone calls, but as i have the spoons, i can write and post on the pages of our senators and representatives, and get the message out there that WE ARE HERE, we are real human beings, and we have a voice—-and it is LOUD!!!
They will NOT take our safety net away!!!!
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I am for a single payer Medicare for all, if it includes the ability for Disabled people to be able to have in home support services, like we now do on Medicaid.
They can call the new program Medicaid if they want—-either way, it should be all inclusive to cover, all medical care, vision care, dental care, in home support services, prescriptions, all of it. They can call it anything they want, just make it a single payer healthcare for all.
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Note to all in our House Of Congress:
If you run for the Office of congress to work for us, this means LISTENING to us, NOT SHUTTING US OUT AND SHUTTING AND LOCKING YOUR DOOR TO US!!!!
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I sincerely feel our country needs a whole new system of governance. The current two-party system and capitalism has failed us, miserably.
I also feel our country should be divided into provinces, like Canada is.
Rich people should be required to pay the most taxes, because they can afford it. This will provide money for infrastructure, education, college education, healthcare for all, decent, affordable housing for all, and a secure and expanded living safety net for all of those who are elderly, disabled, and veterans who fought for our country in wars that should not ever have been.

Monday, July 11, 2016

Still Scared, Very Scared

I honestly do not know how much more of this i can take.
I am okay as long as the speed radar trailer is here on my street. But my police dept. has failed in letting me know who my new beat coordinator is. I finally Googled it, and found out that way who he is. My last beat coordinator was supposed to let me know AND he was supposed to introduce him to me. He never did either.
They don’t let me know whether i can have a working speed trailer here on a regular basis for the sake of my health, because without it, the street is so wild i have meltdowns which leave me physically ill—i need to know.
The speed trailer is still here, and i am very grateful it is here….but all i get from the police is silence and he not knowing when or if it will get taken away from me again. The stress of not knowing is getting to me.
I am not posting this to badmouth anyone, but yes, i am upset that police depts. do not do a much better job than this so that REAL bridges are built between them and us….ALL of us, and that includes Disabled people, shut-ins, Black and Brown people, rich, poor, homeless, elderly, etc.
REAL community policing means actual OPEN LINES OF COMMUNICATION between police and us, not this never ending silence, and no answers to my phone calls and emails——and me left hanging as to what’s going to happen next.
I DREAD the day they take this speed trailer away from my street. I SO dread that day. I would hope they would place another working one here, and also place that one on my side of the street where i can see it working.
I also need to get out of this house more often than i do. I used to love going out to eat, going to the movies, going to church, and going to the ocean. I do not get to do any of that anymore, except eat out maybe once a month if i’m lucky, and this gets to me greatly too….because i get so lonely to be able to be around people and involved in my community.
Below is another picture of the RU2 Fast 870 speed radar trailer that is still on my street, but for how much longer, i don’t know.

Friday, July 1, 2016

Scared, Part 3

I am a deeply lonely Autistic and physically disabled adult who has no family support at all from her three brothers, one sister, and their families either, and no real in real life local friends either. I do have love and support from my mother who lives in Idaho, and my eldest sister who lives in Arizona…..but they too are no longer living here…..so yes, i get VERY lonely, so lonely i want to roll up into a ball, but cannot due to physical disabilities……
I have deep trust and abandonment issues that no one can realize how deep they go….so all of my life i have latched onto certain roads, highways and electronics, usually stereos, and any electronics that are eye catching and i like how they work……and i have made some of the most awesome imaginary friends ever out of these!!! I could write a book just about those awesome friends i have made!!!
Having the speed monitor here on my street where i can see it working for one whole month has been a real therapy to me, and now this morning i am deeply depressed and crushed because the once sturdy folding chair i used to go sit outside, broke underneath me last night…..now all i have left is an old but still sturdy wooden chair…..and a regular sized bath chair that i don’t use…..(i use a full-sized bath transfer bench for my showers now)…..to tide me over till i get the new chairs that i did order from Amazon, because thank God for credit cards…..but those chairs won’t be here till Tuesday, and i am scared the police are going to take this speed monitor away from me this next Tuesday……
and do not want to waste any time not being able to spend as much time as i am able to spend with this speed monitor, before it **is** taken from me.I cannot mentally or emotionally afford to **not** sit outside to watch and pretend “talk” and “converse” with my friend who i have made out of this speed monitor…..i have to either use the wooden chair, or the bath chair…or hopefully if Connie can find something, use that, to tide me over till my chairs from Amazon come.
I do get paid today, so i may have Connie get me a chair from somewhere.
I also hope for a way to be able to buy my own speed radar trailer, that is just like the one that is outside.
I just wish and hope i could have in real life friends who would not give up on me, who would get me, and who would take me places and do things with me. I hope and wish i can get a way to move from this awful neighborhood once and for all.
This post is public and shareable. Pictured below is an RU2 Systems Fast 870 speed radar trailer.

Monday, June 27, 2016

Scared, Part 2

Is still so very, very worried and fearful that the police are going to take the speed trailer away from me this week.

I really hope they’ve realized that i have not had to call or email them ever since they came to turn the speed trailer on on June 2nd for me. I hope they get to read the letter the psychiatric nurse i saw this past Thursday, is writing to them. I hope one of my friends can help me start aChange.org petition to send to the police about this.

I don’t want to have to live on this street anymore, without a working speed trailer here on my side of the street where i can easily see it and monitor it from my house. Because without the speed trailer, my street is wild and i feel unsafe here. Greatly unsafe. The speed trailer makes me feel a sense of security i have never felt ever since i moved here 25 years ago.

Having the speed trailer has meant me being able to actually get outside alot to watch it and take pictures of it, which has resulted in me getting to say hi everyday to some of the business neighbors to my east who i thought didn’t like me…..and finding out that they are friendly…..that they do like me and that they do understand my need to watch the speed trailer working.

One of my favorite servers at a local restaurant who i am friends with here on Facebook, has even seen all of my posts about the speed trailer, and she even agrees it has helped me, and saw how much of a wreck i was when they took the other one away from me on April 25th and left me with no speed trailer at all for one whole month, then put this one here, and did not turn it on till a week after it had been here.

I am praying so hard. My mom is even saying a continuous novena for me that the police will keep a working speed trailer here from now on, till i am able to move from here.
I AM going to try to find some way i can move from here. Hopefully i can be out of here by the first part of 2017, or earlier, if a miracle happens that will open those doors for me.

Below, is another picture of the speed trailer. It really has become a good imaginary friend to me that i feel i greatly need at this time of my life. I hope the police will please understand this and let me keep this one, which is an RU2 Systems Fast 870 speed trailer, or the Wanco speed trailer, either one is fine with me.


Sunday, June 26, 2016

Scared

I have been really blessed to have a nice working speed radar trailer here, which has been here for over three weeks now. But now that it will be week four, will the police take it from me this week and leave me here with nothing once again? This really is worrying me. It is worrying me greatly.
I so dread going back to the wild street and me having those awful meltdowns that i was having again. And being without my friend again. I don't know if i will be able to handle this this time.
I pray it doesn't happen. I pray they let me have either this or the Wanco one, and that they keep switching between the two, for the sake of my health and sense of safety. Till i am able to move from here.

Thursday, June 23, 2016

Update On My Situation

I just realized it’s been a month since i last blogged. I have been enjoying being able to have a new speed radar trailer on my street for the past month. After making two frantic tearful phone calls to two police sergeants, they finally came and turned the speed trailer they had placed on my street on May 25th, on—on June 2nd is when they turned it on—–8 days after they had placed it here.
To be honest, i actually love this new speed trailer a lot more than i did the Wanco one i had had before. This new speed trailer is an RU2 Systems Fast 870, and it actually looks and works even better than the Wanco did. The same imaginary friend that i had made up for the Wanco one, is my friend in this speed trailer also. I feel safer here again.
I realize this is just s temporary fix for my overall situation though. I still badly need to move, and i very much want to move to either the
San Francisco Bay area,
the Pacific Northwest,
New York City,
New York State,
Long Island NY,
or the New England areas.
Because many of my Facebook Autistic Community friends live in these areas, and i know in my heart of hearts that i would have a much better chance of meeting even more cool people,
of being actually able to get out of my house to go places and do things,
and i would have a better chance at getting help for my legs,
and many other vital services i have not been able to get living on the Central CA Coast.
Most importantly, i know i would not suffer from the deep aloneness and loneliness that i suffer from here whenever my caregiver/friend Connie isn’t here to help me. Most of my family literally shun and ignore me like i just don’t exist to them. Here, i am disconnected from people, and my community. Even though i was born and raised here.
I need a way out. or i am going to perish. A human being was not made to be alone and isolated from life…..and i am, all of that…..and being so hurts me so very deeply like no one can know or realize.
I live in daily fear that this new speed trailer will also be taken away, and then my street will be back to wild loud fast screaming noise again, and me having constant meltdowns from the time i wake up to the time night falls…..and me losing my imaginary friend yet again.
It should not have to be this way. For any of us.
I am calling for police departments to start listening to us Autistics, to learn about us, to understand us, and our plights and needs, and to accomodate us where we are at in life.
I am calling for all people to listen to us, learn about us, and understand us.
We are human beings. Please stop ignoring us and turning us way. Please stop ignoring me and turning me away.
(Below is an up close picture i took of the new speed trailer. My coping mechanism for a life that has truthfully, become unbearable. This speed trailer makes me feel safer again while having to live in this awful neighborhood.)
Image description: Below picture is of a street at sunset, looking East, with tall metal building, trucks, cars, trees, a light pole, and the speed radar trailer is at the center of this picture. The speed trailer frame is white, with a “Your Speed sign on top of a white framed electronic black message board, with the number 23 on it, as i took this picture as a driver was passing by. Below the electronic sign, is a white metal speed sign that says “Speed Limit 25 MPH. Below that is a large white metal box mounted on a small painted white trailer frame, on two tires. These trailers are designed to be towed anywhere where they are needed to calm traffic in problem areas. My street is a problem area.